Sunday, 5 August 2012

Gleevec has stopped working for me

The bad news is that Gleevec has stopped working for me. I have been taking Dasatinib for last 1 month but still I am facing the same problems. In last blood report my hemoglobin was down to 5.7 and WBC count was 1,700. platelets 4000 (normal 150000-400000). Again I was given a blood transfusion with 850ml of blood and 350ml of platelets. Now my Hemoglobin is 10.5 and i feel little good..

As per my doctor, BMT is the only hope for me... So I am preparing for my Bone Marrow Transplant.. It may cost INR 700,000-800,000. I don't know how much time it will take to arrange the money for me..






3 comments:

  1. Consider looking in Spain. When I was searching ( back in 2006 when I was Dx 'd ) I found something there. I'm sorry I have no specifics. How about Tasigna? I grew resistant to Gleevec after 2 1/2 - 3 yrs & started Tasigna. At first, I got intoxicated & had to suspend all meds for a couple weeks ( or die vuz I had kidney, heart & liver failure) .... Since then, June 2010, ove been on 1/2 dose at 200 mas / 12 hrs ... I have bone & joint pain big time and neuropathy as well & I take Lyrica for neuropathy & Tramadol for bone & joint pain - an opoid. I'm concerned about developing dependence but honest-to-goodness. So far, I haven't had a craving for the drugs because the pain comes before I get a chance to crave. I take 100 mgs of Tramadol every 8-12 hours - for pain. With this, I keep on going even though I am not sure how healthy it is to block out the pain to accomish my agenda (job as bread-winner & Mom & GrandmaM) ... I read once about the coca harvesters in Douth America & how they chew the leaves so they can work more even when they're tired, sick or hungry & I think Tramadol might have the same effect on me...
    BUT for now, I stick with my current agenda.. I hope some of my experience is of use or at least interest to you...
    Best wishes & God bless & all..,
    Darcy Hook
    Age: 54 - on Aug.09.12
    CML SURVIVOR
    Dx : Jan. 2006
    Current CML Treatment : TASIGNA / Nilotinib

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  2. Thank you for your information.. and my best wishes to you also.. if you have any CML blog of you please share me so that can get help from your experience..

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